Tag Archives: story

Dear Hidradenitis Suppurativa

Dear Hidradenitis Suppurativa, You snatched away my privacy; but you taught me humility. For a time, you took away my ability to walk; but you taught me to cherish the movements of my body. You took away my ability to … Continue reading

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Living in Fear

Here’s a not-so-secret: Classes start today. Here’s a secret: I’m terrified. I’m not terrified of school, of course. I love learning, being actively engaged in class (I’m the annoying student who always sits near the front row and asks a … Continue reading

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“Look for the Rainbow”

Today I’m going to share something with you that is very special and empowering to me. Recently, a close childhood friend of my mom’s shared my pain and wrote a beautiful poem about finding the hope in pain and sorrow … Continue reading

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Stuck in “One Year Ago” Land

I haven’t blogged in a while because I’m in a bit of a rut. I feel like I’m trapped inside my own head and I’m not sure how to reach out about it. Lately, I’ve been stuck in what I … Continue reading

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Happy Birthday, Mom

Today is a very special day. Why? Because today is my mom’s birthday. Let me tell you a bit about my mom: This is the woman who dedicated her life to making me feel less lonely.  Last year, when my … Continue reading

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Tat-two Year Anniversary

I never saw myself as the kind of person who would get a tattoo–in fact, I saw myself as the person who would never get a tattoo. I hadn’t even considered it until a certain phrase crept into my head. … Continue reading

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Outrageous Diagnosis #1

As I’ve mentioned in “My Story,” I was handed some pretty intense diagnoses before I was finally given the correct one. They were…stressful, to say the very least. And each one put me through its own layer of hell before … Continue reading

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What HS Means to Me

Isolation. Wishing I could just be like everyone else. Alienating myself because I’m different. Feeling lost and not in control. Misunderstood and judged. Many, many tears. Digging around to find myself in this mess my life has become. No, I’m … Continue reading

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That Time I Thought I was Dying

(Spoiler Alert: I survived.) Let me start by painting a picture for you: The morning of Friday, July 24th, 2009 (and by “morning” I mean 3:30am–the one time we were grateful that my dad regularly went to work so early), … Continue reading

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Sick People are Gross

Warning: Some of this post is gross. When I was younger, I was legitimately afraid of people with orthopedic casts. I was convinced that they were going to use the plaster on their arms to hurt me, so I just … Continue reading

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